NORD and the Galactosemia Foundation Jointly Publish First “Voice of the Patient” Report to Help Inform the FDA and Researchers - National Organization for Rare Disorders
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Last updated 11 abril 2025

GLOW for Galactosemia Race & Family Event

Highlights from the 2022 NORD Breakthrough Summit - National

Volunteer Spotlight: How Judy Advocated for Better Access to Care

NORD and the Galactosemia Foundation Jointly Publish First “Voice

NORD Gives Back: Advocacy and Action - National Organization for

AAMDSIF and NORD Launch New Natural History Study of Paroxysmal

Senate Passes Landmark 21st Century Cures Act - National
Scholarship Foundation. of Santa Barbara Report to our Community

Advocating for Rare Disease Patients at the NIH - National

NORDpod - National Organization for Rare Disorders

Externally-led Patient Focused Drug Development Meeting for
Scholarship Foundation. of Santa Barbara Report to our Community
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